Sunday update: a rough start.

Danny just got the call that today wasn't Henry's best day.  Dana called CMH when she woke up at 3 a.m. to check in on Henry.  The doctor that she spoke with told her that they needed to come up to the hospital right away.  When they got up there, Henry had been moved back to a more critical room and the "pole of doom" was back (but he was not hooked up to anything on the pole of doom yet).  They discovered that the problems were due to dehydration.  His fluid/milk intake and meds to help with urine production have been adjusted.  They have him back on oxygen for the night, but hopefully will be able to take him off of that again by tomorrow.   Henry seems to be stabilized again, so the day is ending much better than it began.

Praying for no more steps back.  Just forward steps towards home!

The good news just keeps coming!

Lots of good news today!  David called with the update that the Pole of Doom is gone!  Here is what that means:  OXYGEN: gone!  ART LINE IN LEG: gone!  CHEST DRAIN: gone!  PATCH: you guessed it, gone!  He does still have the PICC line for now in case it becomes necessary, but all of the rest of those tubes, lines, etc are GONE!!! 

They tried to bottle feed him today and that went okay, but not perfect.  They'll try again later and hoping Henry will get the hang of the bottle after 2 weeks without.  Overall, still a wonderful day!

And to sweeten this already great news: David & Dana got to hold Henry again!  Yaaaaaay!

I'm sure you all have big smiles on your faces already, but if not here is something that will make sure you do: David (somewhat proudly?) noted that Henry pooped on one of the nurses today.  That's one way of trying to get out of the hospital earlier! 

Happy Friday!

Ventilator is outta here!

Just got the call from David that they took Henry off the ventilator about 45 minutes ago!   He now has the nose hose back to make sure he is able to get adequate oxygen levels, but he is doing the breathing!  Way to go Henry! 

And that's not all...the catheter is out as well!  Time to break out the "pee pee tee pee"! 

David also said there is a possibility of removing another tube or discontinuing another med later on today.  Will keep you all posted if that happens! 

Much praise is due for all the progress Henry is making.  I am so hopeful that soon David & Dana will be able to hold their baby boy again.

A Good Day.

Just got off the phone with Dave. A few things that happened today.

Henry started every breath on his own today. Still not breathing on his own, but was starting every breath today..... even while he was sleeping!

Henry got to wear some cool teddy bear booties. Dave said they were a little big, but that means he still has some room to grow into them.

Henry decided to wake up and look around for about an hour. I'm sure he can't wait to see his extended family..... I know they are ready to get to see him!

And Henry also decided to give his mom and dad a present or two in his britches!

I'm sure there was a lot more, but this is what I got. Keep praying!

A message from Grammy

Hi Baby Henry,

Your Great Great Grandma McGinnis wants to say hello to you.  I have not been able to see you but I have spent many hours praying for you.  I saw pictures of you and you are a sweet baby boy and you are loved so much.  Tell mommy and daddy to give you a hug for me when you get strong enough.  I love you all and will keep praying for your healing and for strength for your mommy and daddy.

Good for a smile! : )

In the midst of a really stressful situation we thought we would share a conversation that was had last week between a good friend of David and Dana's and Dana's mom and dad, Mike and Darcy.

http://www.xtranormal.com/watch/7470003/

type the above site in the address bar and enjoy!

Remember...... we love you Fritz. Thanks for the laugh!

Stitches and Staples and Wires, Oh My!

Henry is stitched, stapled, and wired up and doing well!  He is still very sedated from the procedure, but this one big step forward has been made.  Once he wakes up, the focus will be on: getting him off of the ventilator, weaning him off of meds, and starting bottle feeding again.  So, prayer please that his body will be strong and adapt to these changes smoothly.  Prior to surgery, Henry was doing a great job of starting breaths and letting the ventilator finish them, which is a goodindicator of how he should do once they are ready to take him off the ventilator.  But to be cautious we must be aware that he has been on the ventilator and feeding tube for a considerable amount of time and therefore may take a little while to "remember" how to do these things on his own.  He doctors and nurses have told David & Dana that it is up to Henry now.  He has proven to be a strong little guy up to this point, so our prayers are that he will continue to be. 

And in the spirit of the season, David said that the staples came just in time for Halloween.  Here's to hoping they are able to dress Henry up a little bit for some good baby's first Halloween photos!

Patch has been closed!

Just got word from Dana that the procedure is over and it went great!  Henry is closed up!  Will pass on more information about his progression as we get it. 

The moment we've been waiting for! (or one of them anyway)

Danny just got off the phone with David.  Tomorrow morning at 8 a.m., Henry should be getting stitched back up!  Hooray!  Of course, that is assuming that all continues to go well for him tonight.  So, please direct your prayers around Henry tonight that he will stay on this same track with no surprises in the morning.  The doctors have reassured David & Dana that the stitching up process isn't bad at all.  Usually about 15 minutes or so. 

Will update as soon as we know that the procedure is over and all has gone well.  Don't be worried though if there isn't an update by 8:15 am!  I am sure David and Dana will want to spend as much time with Henry as possible once he's stitched up, rathering than calling me with news!  

Again, the prayers are working!  Keep them coming. 

New Henry Pictures!

Henry in his pumpkin hat.  So cute--notice the little stem coming

out of the top too. Can't wait to see his Halloween costume!

Henry continues to make progress.  We truly feel that this is a testament to the power of all the prayers and support they have received.  Keep it up!  He has been able to be taken off some meds and start the tapering process on others.  Tubes are being removed.  He finally gets to wear socks for at least periods during the day!  So, while he still can't wear all the adorable baby outfits filling up his nursery...socks he can now wear.  And he has some cute ones!  

We are hopeful that he will be able to be stitched back up by early next week.  This is where almost all of my thoughts and prayers are focused.  I think it would be such a relief for David & Dana to see that next step toward recovery from the surgery.  We are so grateful for all the improvement we have seen over the last week and are hoping it continues.  Every step forward is one step closer to getting this guy home where he belongs! 

One thing I realized I posted incorrectly earlier: it is the pulmonary VEINS not the pulmonary artery that there is a big concern with growth.  So, please redirect your prayers towards the pulmonary veins (not that God doesn't know the need...but it can't hurt to be specific). 

We were able to see some great videos of him tonight.  Lots of good eyes-open time and grumpy old man faces.  If only we could hear what he was thinking.  Knowing his parents, we are certain he has some funny thoughts going on in that head of his.  Too bad we will probably have to wait another year to hear much of that! 

On a funny note: Dana got a notice in the mail this weekend that she is being summoned for jury duty!  Just the distraction she needs, right?  Thank you to the doctors at Children's Mercy for their notes getting her out of this! 

As always: THANK YOU for the continued prayers and support of this little famiy that we love so much.  As a reward, two more pictures of Henry:

Wide eyed.  As someone who really cares about eyes,

I am so proud to see how well he is tracking! 

Meet Henry's best friends: Grave Digger and  Blue Thunder--MUD Edition. 

You just know this kid is going to be tough. 

Two weeks, one day since Henry came into this world.

He is doing pretty good again today!  Urine output is still improving.  It is starting to catch up with the amounts of fluid they are putting into him...which is really important in reducing his swelling.  Still a little ways to go before they are able to stitch him back up, but thankfully progress is still being made. 

The doctors are starting to reduce some of Henry's meds.  Some of this he has tolerated wonderfully, and others they are finding that he may need to be tapered off more slowly.  

Henry is also able to be fed some milk!  He hasn't been allowed milk since his surgery, but they are now reintroducing it in small amounts.  A great step for bottles at home...and that time can't come soon enough!  Until then, we are thankful for the progress that is being made and (trying to) patiently wait for the right time to stitch him back up, move him out of PICU, and get this boy home to his very own nursery.  Hang in there Henry, David, and Dana...we are faithful that this time will come soon!

 

Progress.....

Henry seems to be taking more baby steps. His doctors are saying he is ahead of the game and things are going well. The swelling is going down some as his pee is increasing! But, the doctors still need to see the swelling reduce more before they are comfortable with the next step of stitching things up.

Mom and Dad (meaning Dave and Dana) have been going home to sleep in their own bed and getting rest when they can. Dave and Dana said that today Henry opened his eyes for 10-15 minutes and was looking all around. Dave said the best part was when he made eye contact with both him and Dana. I'm sure Henry was telling them "mom and dad......I'm going to be ok. Don't worry about me. Go home, get some rest....I'm in good hands......I love you both." I'm no expert on baby talk or baby eye contact, but that's what I imagined him saying.

Anyways, another good day. Praise the Lord. You have so many prayers going up to heaven for you, Henry. Stay strong buddy.

Thank YOU...KEEP PRAYING!!

THANK YOU can NOT be said enough!! Lil' Henry's family is so thankful for all of the prayers that are being said...and GOD IS ANSWERING!! Please do not think this lil' guys hurdles are over and he has won the race! We are still expecting ups and downs for quite a while. Dave, Dana, Henry and all of the extended family are still going to need support, love and most importantly prayers. So, why we are grateful for all...please don't forget them..and you might want to THANK God for what he's doing!! :)
OH HENRY..you little booger..you are a tough one little man..stubborn just like your mommy & daddy!! (that's a good thing right now!) Keep fightin'...there are A LOT of people who can't wait to be able to hold and spoil ya!! :)
Love, Prayers..and PEACE!
Aunt Amy (one of the greats!)

Oh Henry!

Henry's heart rate was below 200 this morning-in the upper 190s. That's great news...but it gets better! The doctors ran some tests and discovered that in between his regular heartbeats, he was having some extra beats at random. They gave him some medication through an infusion. His heart rate is now down to...140! From 220s a few days ago, to 140 today. Hooray! Of course, they will try to wean him off of that drip, but if the heart rate goes back up, there is a med they can put him on. The lowered heart rate should relieve some of the stress on his vessels too. God is good and these doctors/nurses are too!

The two biggest needs now are:

1. Pee. Henry is still peeing, but not as much as the fluids they are putting in him. This is causing him to remain swollen some, mostly from the belly button down. The swelling is the main thing that is preventing them from closing him now.

2. Pulmonary artery still needs growth. At this particular point in time, this is not an emergency, but could become urgent at any point down the road. So, let's go ahead any pray for growth now before it does become an emergency.

Below 200!

Just got a call from Dave..... heart was beating at 199! Nurses said Henry was doing a great job. Dave and Dana are heading home for the night. Pray they sleep well, get some rest, and that Henry continues to stay strong and have another excellent night. What a great day. Thank the Lord.

Day 4 post-op: another good report!

More good news on Henry's progress today! His heart rate has slowed down to the lower 200s...and his nurse is determined to get him to dip below 200 before she leaves her shift tonight.  Blood pressure and kidney function look good.  They have even been able to take the line out of his head!  Things looked so good last night, that the nurse told David & Dana that they should go home to get some rest overnight.  Much needed! 

So, today is a good day (I'm sure a great birthday present for Aunt Abby in New Mexico).  And we have faith that this trend will continue.  If so, it is possible that they will be able to stitch Henry back up by the middle of the week! 

As always, thank you to all the friends, family, and those that don't even know them for your continued prayers and support for David, Dana, and Henry.  It's working! 

Kelli

Henry, Dana, & Dave:
What a beautiful family. The pictures are wonderful to view. As I set in church today, Reverand Burry blessed Henry David Hermon. She spoke of him through out the sermon. She spoke of the tragedies and complications you have encountered. These are not the work of God. God's work takes time & patients. Your signs of improvements, even the small steps you are taking are encouragments of Gods miracles at work. Keep fighting and stay strong. Prayers to all. Love the Curry's.

Henry, Dana & Dave,
All of your family in Gillette, Wyoming want you to know we are praying for you constantly.
Henry it is so wonderful to see you are having a better day. Just keep fighting, you have so much to look foward to with such a loving, caring family. None of us have got to hold or see you but we are so looking forward to the day we can come visit. It is so wonderful to be able to view the pictures of you and your loving family on line. Keep the faith and with God's willing hand we will get to witness one of life's miracles. We love all of you, stay strong. Hugs and prayers!
Great Aunt Jane

Proud Gandparents

We are so proud of you, keep fighting. We can not wait to hold you and kiss your sweet cheeks. I love the picture with dad holding and explaining the next challenge that you, your mom and dad had to go through or are you just covering you ears? Be stong have faith, courage, and hope.

Love Grandma Darcy, Grandpa Mike and Uncle Ryan

Henry & Great Grandpa Dale

Henry,

Hooray! You had a pretty good day today.   Your blood pressure is staying steady, heart rate is coming down just a little bit, and you are pottying (sorry, had to say it again).  Hope you have another good day tomorrow. 

Your Great Grandpa Dale has also been in the hospital since just a little after you were born (he did get to meet you first).  When he got to the hospital, he told his nurses all about you, his first great-grandchild.  He has confidence in you "Henry will be fine, Henry David is a good strong name."  About the time that you had surgery, Great Grandpa Dale started having a really hard time breathing right.  While you were still sleepy after surgery, Great Grandpa Dale's doctors made him sleepy too and hooked him up to some machines to help him be more peaceful, just like you.  And now today, we hear that you are starting to wake up a little bit and so is Great Grandpa Dale!  We wonder if you two have been passing eachother when you were both sleeping: did he get to hold you, hug you, tell you jokes? 

We have all been remarking about the things you and GGpa Dale have in common: you have matching PICC lines, his heart gives him trouble too, he has lots of doctors trying to make him better.  But I really hope you have a lot more in common with GGpa Dale than that.  Because that stuff is such a small part of him.  He is a very special man.  I have only known him for a few years, so your dad, Uncle Danny, Great Grandma Ruth, Granny Nanny, Papa Don, and your great aunts, uncles, and cousins will be the people to tell you all the really good stories about him.  Because GGpa Dale won't tell you about himself.  That is just not the kind of man he is.  But, I can tell you this: GGpa Dale is definitely the kind of man you would want to be like when you grow up.  Strong, smart, unselfish.  Easy to love and admire.  Good sense of humor.  Strong faith.  He doesn't talk a lot, but when he does, you want to listen.  We really love him & you too. 

Praying to get good news about both of you tomorrow. 

Love you,

Aunt Kelli

Henry, a message from Finland!

Dear Henry,

You don't know me, and I don't think your dad remembers much of me. He was
just a little boy when I spent a year as an exchange student with your great
grandma and grandpa Sheri and Joe. It is a warm, wonderful family you are a
part of.

I have two daughters. Kajsa is 4 years old and is quite taken with your
story. She wants to know all about your situation and has decided she will
be a doctor when she gets older and help babies (she has also decided I
should change jobs and work as an ice cream taster). Kajsa wanted me to
print the picture of you holding your head with both hands, and she now
keeps it next to her bed and looks at it when she says her prayer at night,
also for you. She also wanted to learn how to write your name.

She is convinced that when you get a little bigger she will fly to the US to
meet you and teach you how to skate and give you some Finnish chocolate.
There is a whole world waiting for you.
But for now you just concentrate on getting better, a step at a time,
carried by all the love surrounding you.
You are all in our thoughts and prayers.

Mikaela, Samuli, Kajsa and Annika from Finland

Henry Update

It sounds like today is another relatively positive day for Henry!  They have been able to decrease the blood pressure meds some and the blood pressure is holding steady.   His heart rate is still elevated around 216 and he needs some more urine production, but overall those concerns from earlier in the week are showing slow steps towards improvement.  We are hopeful for more progress today, even if it comes in "baby" steps.   One big need now is the development of the pulmonary artery.  The doctors have expressed to David and Dana that this is a very serious concern.  So, prayers in general for Henry today, but perhaps with an emphasis on the pulmonary artery development.  And praise for the small steps of improvement we are seeing! 

Kelli  

Dance in the Rain

David and Dana:  A short note to you guys from an ole guy.  I know you guys have been through a lot and I have a couple of thoughts on my mind.  When growing up my grandpa used to always say to me "it is never as good as it seems and not as bad as it looks."  For some crazy reason I find comfort in that.  One of my favorite sayings I like now is the one that says Life isn't about that storms that pass ... Its learning to dance in the rain.  Needless to say you are going thru a storm now, celebrate the gift of Henry and continue to dance in the rain.

To Henry:  When you get a little older I will treasure that first river trip and I will then share with you about your mom and dad and how they danced in the rain.  After then I will probably throw you in the river, probably 3 feet deep, and tell you go get your lunch because we eat in the river, ITS TRADITION!

Keep the Faith

River Wayne

A message from Great Grandma Sheri

Dear Precious Little Henry,

 

You are one special little fella to have such a large family on all sides that love you so much and are praying so fervently for your healing.

This morning when I was saying one of many prayers for you I told the Lord that I still felt at peace and was sure of your recovery, but really needed a sign.  Just a few minutes ago we found out that you had "wet" ( as G. Gpa Joe says) and that was the sign I needed.

We are so proud of your mommy and daddy for the strength that they have shown, but just know Dana and David that it is O.K. to break once in awhile.  We all have and sometimes that is what is needed to get the strength back.

We love you all so much and can't wait to get you up and going strong.

We are in continual prayer for you and your mommy and daddy.

Love you bunches,

Great Grandpa Joe and Great Grandma Sheri

Prayers for pee a small success

Hooray!  Henry has a small amount of pee today.  They still would like more, but some is better than none.  And sorry, Henry, you can hate me when you get older for announcing to the world about the amount/frequency of your urination :)

More updates from today:  the heart is still beating very quickly (over 200 beats/minute).  The doctors are now thinking that there is a thyroid condition that is causing  the blood pressure and heart rate problems. While we hate to hear of any more organ involvement, there is a possibility that this could be a good thing...if they are able to control the thyroid, they may also be able to control some of the other problems.  So, that is the focus of today.  That heart rate needs to slow down.

Also, sleeping is just not happening for David and Dana.  Between less than optimal sleeping conditions at the hospital and their concern for Henry, falling asleep for any length of time just proving to be difficult.  Of course, they need sleep to maintain any kind of calm, strength, good health that is going to be necessary to get through this.  So, prayers for sleep today too please. 

Hoping this weekend brings some good news....

Message from Jessica (Huppe) Pearson

After I read the post about Henry's body not liking the surgery I was listening to klove on the radio and saying a prayer and the song that came on was so perfect for the obstacles that Dana, David and Henry are going through and I felt that I should share the song. It reminds us once again that no matter what God is still there holding you. I love you guys!

Your Hands by: JJ Heller

I have unanswered prayers
I have trouble I wish wasn’t there
And I have asked a thousand ways
That you would take my pain away
You would take my pain away

I am trying to understand
How to walk this weary land
Make straight the paths that crooked lie Oh Lord, before these feet of mine Oh Lord, before these feet of mine

When my world is shaking, heaven stands
When my heart is breaking
I never leave your hands

When you walked upon the earth
You healed the broken, lost and hurt
I know you hate to see me cry
One day you will set all things right
Yeah, one day you will set all things right

When my world is shaking, heaven stands
When my heart is breaking
I never leave your hands

Your hands that shaped the world
Are holding me
They hold me still

We are all still praying so very hard for Henry.
Love You guys!
Jessica

A new update

Dana sent a message earlier that Henry's body is "not liking the surgery" and they were giving him blood.  He is at a standstill in his progress right now.  Praying for some improvement, even if it is a small step.

Pray for pee (no, I'm serious)

The latest update from the doctors is that Henry's kidneys are not functioning in the way they should.  While praying for pee may sound like a funny matter, it's not!  His kidneys need to start functioning properly to avoid dialysis. 

As you all can imagine, seeing Henry in this state is nearly unbearable for David & Dana...and it's unbearable for all of us that love them seeing them go through this. So, prayers really need to be concentrated on their behalf just as much as prior to and during surgery.  It was such a blessing yesterday to have had a successful surgery, but the road is still long to recovery. 

Below is a message sent to me by a friend who's son also required open heart surgery at CMH, I thought it was a good reminder:

There is no prep for the post surgery part. One of the cardiologists told me" people solely focus on the surgery, and that is just an aspect of it." I wish I would have known before hand what that meant. I don't know how they are, my husband could handle seeing our son after surgery, me not so much. Please let me know if there is anything at all they need.

 

We can all imagine what it would be like to have your newborn child have such invasive surgery or what it is like to see him "open" after surgery...but none of us can really understand what they're going through.  David, Dana, and Henry need our support now more than ever.

 

 

Notes from the "great" Aunt Amy :)

OH HENRY!!
You little booger! You are so well loved. I am sure you have NO idea of how many prayers are being said for you & your mommy & daddy. People as far away as FINLAND are praying for you daily. We know you are in the best place possible, with doctor's & nurses with great knowledge caring for you. And Most importantly we know that God is protecting you. You keep fighting...and know that you have a "granny nanny" & Papa Don, and Grandma Darcy & Papa Mike and LOTS of aunts, uncles, and cousins just pleading God to make you strong, healthy and well enough to go home! You are going to make a huge impact on this world lil' guy, you already have a pretty good start! (who else gets their pic put out on the World Wide Web at 2 days old?) Keep fightin' ...the prayers are gonna be answered!! Love,
one of your "great" aunts!!
Amy :)

Day After Udpate

Sounds like things are going well today. Taking baby steps. Dave said that Henry's blood pressure was a little lower than what they would like, but the "oozing" has slowed down and is starting to clear a little. Keep praying. Dave and Dana are going to go home and take a break. They need and deserve one.

Pictures of the little guy!

Pictures of Henry during a happier time.  Right now, Henry is not looking nearly this good as he is recovering from surgery.  David & Dana continue to be reassured by the nurses that all is progressing normally, but are cautioned that the next couple of days will be very rough and critical in Henry's recovery.  We pray that Henry will stay strong through these days and that David and Dana will have periods of peace. 

Get back to looking like this Henry!

Update for the night

David & Dana have met with the doctor for the night.  Sounds like all went excellent with the surgery.  At this point, they are still keeping him open likely for the next 2-3 days until they feel confident it is safe to close him back up. 

So: praise for the surgery going well, prayer for him to stay strong over these next few critical days.  The nurse has stated to them that the next 24 hours are critical...a lot of ups and downs as his heart adjusts to all it's gone through.  Just because the surgery is over, this isn't over.  Got it?  Pray.

Thanks for the.continued support for David, Dana, and Henry. 

Thanks giving to God and the doctors and nurses

Thank you for the information. Thank you Lord for watching over Henry and his family. We know You and your angels will be with him. Thank you for all the wonderful medical people who met the challange with your power Lord all can be healed

Going well.

Henry's heart is beating on its own!   There is still some oozing.  Hopefully that will stop in another 20-30 minutes.  The surgical part of the surgery is pretty well over, now just monitoring to make sure all continues to look good.  Then he should be able to be covered up and taken back up to ICU. 

The latest

A nurse just came in with an update.  Sounds like the vessels have been repaired and all went well.  They now need to let him sit for a little while to let some "oozing" stop (a normal part of the surgery).  They still need to sew in the shunt, take him off the bypass, and then he should be done! 

Hopefully another 2-1/2 hours and David & Dana will be able to see him again. 

A message from Jessica Pearson (David's cousin)

That is good news so far! I have been keeping the prayer chain at my church updated. We are all praying. Please give Dana, David, and little Henry a hug for me as soon as you can. It is amazing to see our families at work. We are all so very blessed. I Love You All! Thanks for the updates it has really helped comfort those of us who are unable to be there physically.
Love You!

Jessica Pearson

So far, so good.

Latest update is that Henry is now on the heart-lung machine.  The veins are being repaired.  All is going well. 

To Little Henry you are such a sweet little boy. I pray that God will be watching over you today and many more. I pray for the day when I get to hand you a fly pole and we are standing side by side fishing one of many of the great rivers in the Rocky Mountains. To watch as you catch the fish of a life time, stand on top of the highest peak and be amazed at the beauty surrounding you, or see a six point bull elk in the wild.

To Dana and Dave I am so proud of both of you. Each day you have shown me the courage and determination to handle adversity with great character. For many years I have been preaching to all of my children, that it’s the tougher times that truly determine the individuals we are destined to be. Stay strong believe in yourselves and know that God is with you.
I love you all and hope to be with you soon Grandpa Mike.

Henry is asleep

Just got the update that they have gotten Henry to "sleep".  Starting surgery now.  Hoping for an update in 45 minutes. 

Going in to surgery

David just came out to let us know that they are taking Henry into surgery now.  Will post any updates as they are known. 

A message from Jess & Kenny (friends of David & Dana)

Magic Wand

I wish I had a magic wand
To make it go away;
I'd wave my scepter over you
Until you were okay.

I'd think good thoughts; I'd send you love;
I'd transmit healing vibes;
My wand and I would surely beat
Whatever the doc prescribes.

But there is no magic scepter, so
I cannot cast a spell;
Just know you're often in my thoughts,
And I hope you'll soon be well!

By Joanna Fuchs

 

 

Baby Henry,

 

We are thinking of you and your mommy and daddy today!  Although we've only met you once we love you so much already!!  You see, your mommy and daddy are good friends of ours and we have been lucky enough to be there for some big milestones of theirs already!!  We are pretty excited to be are part of this one too :-)  We can't wait to watch you grow!  Stay strong today and know that God is by your side!!

 

Love,

Jess and Kenny

Blogger in draft: Blogs I'm following

Blogger in draft: Blogs I'm following

The Big Day

Today has come for the big surgery.  I wish I could be there to be the rock for support for the family but as everyone knows Great-Grandpa Dale is in the hospital so I'm going to stay with the great-grandparents and wait for the news.    I have never experienced a major sugery on a baby but I have experienced a major surgery on my sister and I'm thinking of Hank, Dana, David, grandparents, aunts and uncles, but also the extended family.  Today will be as hard of a day as the day we waited to hear what was wrong with Hank.  Dale, Ruth and I will be praying from Olathe and wish Hank all the luck and we will be there in spirit for Dana and David.  Remember to take care of yourself it will be a long day.

Love

Great-Aunt Pam

This one's for you, Henry

Henry,

There is just no way to say how this feels waiting for your surgery tomorrow.  It is impossible to wrap my mind around the fact that a baby that is so cute and perfectly formed on the outside has so much going on in that little body of yours.  For all that needs repaired in that heart of yours, we know you aren't short on strength.  And we're going to need a good show of that tomorrow.  The good news is: the sooner this surgery is done, the sooner you start recovering, and the sooner you get to go home!

This is my main prayer, that your exactly one week old self will be prepared for all the doctors are going to do tomorrow.  Right up there on my prayer list is that God will be there in that operating room, guiding the surgeons' hands steadily and skillfully.  And for your parents: if it is this tough being your aunt watching you go through this, there is just no comprehension of what it is like to be your mom & dad right now.  There are no words to be said to them to provide comfort: I am certain the comfort and peace they need can only come from God and I pray he provides that for them. 

Before I start crying, let's move on to a lighter subject.  A funny story about the picture of you above.  Because you were having the heart cath today, they had to stop feeding you late last night to prepare you for the procedure.  Your mom & dad were able to see you before the doctors took you into the surgical room this morning.  The report was: a hungry, hungry Henry.  And cranky too.  Pulling at your nose hose, fussing around.  Mom put her hand up by you, and you grabbed her hand, shoved it in your mouth, and started sucking on her finger...like you could get milk out of there!  Oh, the anatomy lessons you have to learn.  I suspect you have a few great uncles that would like the first crack at teaching you these life lessons.  I hope your mom doesn't let them! 

Alright, enough for now.  Love you little guy.

Aunt Kelli  

My New Little Buddy

Henry,

Our list of things we are going to do

1. First thing is I need to hold you. I still haven't gotten that chance. It will come, but you have to get better first.

2. I need to look at those eyes. I've heard they are the prettiest blue you have ever seen.

3. Come up with a good nickname. I have a few in mind, but these things take time.

4. Get you into a Jayhawk shirt. We have to teach you what it's like to be a Hermon. No purple. No black and gold. Red and Blue are the colors.

5. Introduce you to our dog Chloe. She loves kids. Especially when you feed her.

6. Go hunting with your dad. I know this is a ways off. But it sure is fun to think about.

7. Teach you how to shoot a basketball.

8. Have a sleep over with your cousin and measure how tall you get on our porch.

9. Go on a picnic. Your Aunt Kelli and I love to go on picnics.

10. Have fun and make some memories.

There are a lot more things Henry that I plan on doing with you as you grow up. But right now we just need to get you better. I'm thinking of you and your mom and dad each and every day. Lately it's all I've been thinking about. I can't wait for you to get home. I can't wait for you to play with your soon to be cousin from Ethiopia. I can't wait to hold you and be that cool uncle that your dad and I have had in our lives. Trust me.....if I'm anything like my uncles you are in for a treat Henry. You'll see what I mean I'm sure. Your Aunt Kelli and I love you. Can't wait for you to come home.

Uncle Danny

"Be true to yourself.
Make each day your masterpiece.
Help others.
Drink deeply from good books. Especially the Bible
Make friendship a fine art.
Build a shelter against a rainy day.
Pray for guidance and give thanks for your blessings every day."
— John Wooden

Henry

I want you to know Henry I knew your Mom when she was very little and she was one of the strongest little girls I have known. She puts her whole heart and soul into what ever she does so I know she is a great mom. You have a family that loves you unconditonally and will always be there for you. Your Grandma Darcy and Grandpa Mike are some of the most determinded people I know and if there is a moutain to be moved they will do it. Abby is one of most loving aunt you will ever know and Ryan doesn't know the meaning of the word can't do it. So little one you come from strong stock so know that this family that loves you needs you in their lives. God will be in that room with you tomorrow and the angels will be there holding ever one up so they will get through this challange. I don't know your dads side of the family but I know they are wonderful people and believe me your Dad needs his first born son by his side, so I ask in Gods son name Jesus that you shall be healed and have a smile on your little face when you awake after your surgery.
love
Jane and Jerry Slizeski

Surgery time

Henry's open heart surgery is scheduled for 9:30 a.m. tomorrow. I will do my best to keep the posts updated with progress reports as David & Dana receive them tomorrow. 

Surgery is scheduled

I just got the call that Henry's surgery is scheduled for tomorrow, although we aren't sure what time.  I will update as soon as that is known.  We ask for your prayers concentrated tonight and tomorrow around Henry's strength through this surgery, the surgeons operating on him, and David & Dana's strength and comfort as they wait on reports from the surgeons. 

At this time, I believe David & Dana are planning to only have immediate family at the hospital tomorrow.  Again, if that changes I will update as soon as that is known.  I know Dana has been checking the blog daily (multiple times), so please do post your comments, prayers, support for them here.  If you have trouble posting a comment to the blog, email it to me at kregier@hotmail.com and I will post it for you.

Pray, pray, pray!

Heart cath a success!

Henry has made it through the heart cath with flying colors!  When the doctor first came out, he said "There were no surprises"--a good thing.  The vein they were checking is open--exactly how they want it to be prior to surgery.  Still unsure on a surgery date as of now. 

There is a concern about Henry's intestines.  Because of the heterotaxy syndrome, his intestine is oriented the opposite way of most people.  Since the intestine is pretty active as a person digests food, they want to make sure that it won't twist on itself, causing a blockage.  That test should happen in the next couple of days, but at this point David & Dana think it's a (relatively) minor concern and should not affect the scheduling for heart surgery.

Right now they are waiting for Henry to come-to after the anesthesia, but sounds like he did great during the procedure. 

Dear Henry...

Little Henry,

Tomorrow is a big day for you. The doctors are going to look inside your heart to help heal you and make you feel better. When they look in your chest, they are going to see hope, determination, love, faith, and of course, strength. The strength and drive you feel to go home; to be rocked every night by your mommy; to be toted around in a big red truck by your daddy. Don't be scared. God has given you this challenge, because He knows you and your mommy and daddy can climb this hill. There will be more challenges ahead, but we will get through this one, and focus on the next. Be strong, and remember you have lots of love behind you. You are a very special little boy, with so much to look forward to.

With all my love,

Aunt Abby

Lord Let Me Walk with You

Lord let me walk with You

Although my steps are small

Stay beside, hold my hand

And never let me fall.

Amen.

To Dana, Dave, and Henry; Love, Ryan

Dana is my sister. I love her so much. She is already a great mom.

Dave is an awesome guy! He is perfect for my sister. He is a great support and strong man.

Henry, I still have not met you, but I love you very much. You are a blessing. You are strong just like your mom and dad. I love you with all of my heart. I wish I could hold you and make it all better. I will soon.

Love,
Uncle Ryan

Recipes please!

Danny's school is participating in a recipe competition of sorts.  There are cash prizes given for first, second, and third place recipes.  Not just cash prizes, but sizeable cash prizes.  Although we are still unsure of the financial need, it is only reasonable to believe that it will be significant.  What a great opportunity for us to help David and Dana without the need to raise a single penny!  I happen to not be one of them, but I know there are good cooks out there.  Or you know good cooks.  PLEASE: share your recipes with us.  Or call your great cooker of a mother, aunt, grandmother, best friend and get the recipe you beg for them to make.  Either post to this blog, or email them to me at: kregier@hotmail.com  Just please put in the subject: RECIPE FOR DAVID & DANA so I don't accidentally write it off as junk mail. 

While we could only be able to win one prize (1st, 2nd, or 3rd), we can submit as many recipes as we like...so give us as many as you've got that you think have the potential to be award winning. 

Below is a little info on this competition:

Categories:  Appetizers & Snacks;  Soups, Salads, & Sides; Entrees; Desserts; Bake Sale; Healthy Recipes

Of course, the recipe must be "original"  Read: not pulled off of the internet. 

Judging is based on: Flavor, Creativity/Uniqueness, Visual Appeal, and Feasibility (can be created in a reasonable amount of time with a reasonable amount of ingredients)

Recipes need to be submitted by November, so please please please get us your recipes as soon as possible. 

Thank you for your willingness help!

Kelli

Heart Cath: 8 a.m.

Henry's heart cath is scheduled to begin at 8 a.m. tomorrow.  Will post updates as soon as they are known.  Please say a prayer as you wake up, are on your way to work, etc. that this will give the doctors the info they need and prepare them for surgery.  Or even better, pray that a miracle has occured and surgery will just not be necessary! 

We were blessed to have David, Dana, and Darcy for dinner tonight.  It was so nice to have that time laughing, talking, and eating (a favorite pasttime of mine) with them outside of the hospital.  To end a good evening, we had the joy of watching some video footage of baby Henry.  Such normal newborn things like drinking a bottle, opening his eyes, taking a nap, even burping--and yet we were all mesmerized by the images on the TV and had perma-grin on our faces.  It was great!  Hoping to figure out how to post some of those videos tomorrow for all of you to enjoy. 

Kelli

A message from Great Aunt Michel

I think it is awesome the outpouring of support for Dave, Dana and Henry.  Clearly they are loved and we all want to make sure they know we are here for them for anything they need.

Re:  Visitors..  As a nurse of 29 years I was very happy that they have now limited visitors.  We are heading into Flu / Cold season and this is a very dangerous exposure for such a compromised little guy.  Some people are contagious before they realize they are.  WE ALL have to do our part to protect little Henry.  My suggestion would be that when they do allow visitors again that it just be immediate family (grandparents and Dave and Dana's siblings).  This is a close family and it is as hard for me to step back as it is everyone.  Our thoughts and prayers are with Dave / Dana and little Henry 24/7 and we want to be around whenever support is needed. 

Pam and I talked last night and she suggested that because Dave and Dana are unable to be with Henry between 7p and 8p that the extended family could alternate taking them out to dinner in order to see them.  Jim mentioned that when visitors are added back in, make it by invitation only and gain control over the flow (which any one of us would help them with).

Extended family and friends;  how about having a party when Dave and Dana are comfortable?  This way everyone that loves them so much could come and see pictures, listen to stories about this journey and show support.  We could tie it in with a benefit of some sort.  I know Dave and Dana have some very good friends and all of you want to see them as well.  I also realize that they may benefit from seeing you.  Lets celebrate little Henrys life!  We can have it at our house whenever they want to.

To:  Dave, Dana and Henry(/Hank)  We love you lots and hope you now know that this little guy is loved as well.  We want to be with you whenever you need us, but are trying our hardest not to smother you.  Think about the party idea when you are ready.  Henry has been in Gods hands since OMC when Julie (the nurse) noted a problem.  He has reasons for being here and he will have a huge impact on the rest of us throughout his life.  Stay strong, but when you have no more strength - we will all be here to give you some.

Great Aunt Michel

Procedure tomorrow

Henry will be having a heart cath tomorrow to give the doctors a better idea on what they are dealing with in preparation for surgery.  We are unsure right now what time that procedure will be done, but will pass that info on when it is known.  At this time, it is my understanding that David & Dana are planning to have only grandmas there at the time of the procedure...but will definitely need all of you there in prayer!  It is my prayer that Henry will tolerate this procedure wonderfully, the doctors will be able to see all that they need to see, and that what they see is perhaps better than what they have been expecting. 

We plan to see David & Dana tonight, so if anything changes in the visiting policy or their needs, I will be sure to update you guys as soon as I know something. 

Thank you again for your continued support of Henry, David, & Dana. 

Also, as I small aside: I have heard from a few people that they have tried to leave comments, but that they aren't "sticking" to the blog.  I am really new to this, so I'm not sure why that is happening.  I know there is an option to click on the right hand side that you are a follower of this blog. Perhaps you have to be a follower to leave comments?  I'm really not sure.  If you want to leave a comment, but are unable to get it to post, feel free to send me an email with your name to kregier@hotmail.com and I will be happy to post it for you.

Have a good day.

Kelli

Henry, a hello from Kelly & Steven (Dad's cousins)

Henry David - I love you already and I haven't even met you. I know it because I love your parents. They're two of the greatest, strongest people I know. I can't imagine my life without them as my cousins. We've been praying for you in Manhattan (and praying you'll be a Wildcat fan :) ) and can't wait to meet you!!!!!

Love,
Kelly and Steven

No visitors for Henry please

To all of those that love this sweet little boy: this is not a rule we want to hear.  And yet, we must follow it.  The nursing staff at Children's Mercy have advised the family that Mr. Henry has been having too many visitors.  Well of course!  We all want to see him and let David & Dana know we are there for support.  But the thing they are reminding us that we must remember is that this little boy has a heart condition and will be scheduled to have surgery very soon.  We have to make our focus on keeping him strong for surgery.  With all the visitors, there is a risk of him catching something and just generally upsetting his system. 

It is my understanding that this no visitors policy will stay in-effect until we hear otherwise.  And just as a forewarning: once we do get word that it's okay to have visitors, we're going to have to be careful to avoid all rushing back up there at once.   I'm trying to think of a good system for this.  Call to see how many visitors are currently at the hospital for Henry/how many he has had that day in order to decide if it is a good idea to head up, or to wait for another day?  Have a schedule of sorts that we can sign up for our day to head up there so we are spacing it out?  I hate to make this so structured, but it does seem that for now that is probably in his best interest.  Please: anyone who has a good idea on how to do this...post it!  I personally haven't been through a situation quite like this before & so I would love to hear about ways that have worked for other people or ideas that you guys think might work well.

Kelli

My sweet little grandson. You have no idea how long I have waited and prayed for you. You are finally here and amazing. Even though you are giving us all quite a scare, I can see in your eyes that you are strong and going to be a fighter. Your mom and dad are being so brave and so supportive of each other. They will be there for you no matter what as will the rest of your very large family.

Dana and Dave, I am so proud of the way you two have handled this little set back. The two of you are quit a couple! Be strong and most of all have faith and keep praying. I kn0w God is looking down on you and your new son with nothing but love.

A bit of good news

Great news: the last two days have been slightly better than the first two days of Henry's life!  While the condition is still severe and he is still expected to have a rough road ahead of him--if we are trying to focus on the positive, there are some things to be grateful for.  Henry has now been off his feeding tubes and ventilator for a full 24 hours!  I believe this is a wonderful testament to his strength.  And just as good: this allows David & Dana to finally hold their baby!  Sadly for all of us friends and family, the nurses are advising to limit the number of people holding him right now.  I take such satisfaction in my role as an aunt, it breaks my heart to not have had the chance to hold this nephew of mine yet.  But, if it's in Henry's best interest, who can complain?  Just to see David and Dana get to hold him right now is a cause for joy.  Particularly if this helps to keep Henry calm, stable, and strong for surgery.

David, Dana, and Baby Henry

Henry, 4 days old.  Sleepy and satisfied in Dana's arms

after pigging out on a bottle. 



While there was progress to rejoice over, today was still somewhat bittersweet for his parents.   Today was the day they should have been dismissed from Olathe Med & going home together as a family of three.  Knowing that the time for Henry to come home is likely a month or more away is a tough reality.  I continue to be amazed by David & Dana's strength through this and their ability to maintain their sense of humor.  While there are obviously going to breakdowns from time to time and triggered by reasons they may not even understand...they are doing a remarkable job.  Our prayers continue to be with you guys!

Kelli

An email update from (Great) Aunt Pam

Hi All

I just got wonderful news for the first time in 48 hours from Diana.    They have successfully weaned him from the tube and he is breathing on his own with oxygen.  The doctors have told the kids that all organs are present but items that belong on the left side of your body are on this baby’s right side and vice a versa but everything is connected correctly.  They are not worried at this time about the holes in the heart because that is the only way the blood is getting oxygen is by mixing until they can do the procedure.  They are planning on doing a heart catheter on him Tuesday to see what the holes look like.   After they put the new blood vessel that will route the blood through the heart correctly in then they will look at what repairs are needed on the holes but that by all images at this time they should be able to be repaired.  He will need the vessel that they put into his chest changed out several times through out his life as he grows.   He will probably have the surgery the end of next week (which I would like to be there) and home within two weeks if everything keeps going well.

Ruth  was sitting somewhere and ran into a young lady who over heard her talking to Dale about the new grand baby and started asking questions.  So Ruth shared the disease with this young lady and she smiled and said he’s at the best place to be and that everything will be ok based off what we just learned.  Ruth looked strange and the young lady said "I’m 18 years old and I have the exact thing as your grandson, and I have had to have 3 surgeries and I’m able to do everything that my friends can do". 

God puts people in the right place at the right time to help us understand and deal with the circumstances that he has dealt us.  I think God was seeing that the family couldn’t deal with any more and provided us with some news, and who would have ever dreamed this young lady would be at the right place at the right time.  I have always loved the Foot Prints in the sand poem and I think this shows how God carries us when we think we can not handle anything more.   We have had so many people around the world praying for this beautiful baby and I think the pray chain is working.

For the first time since Wednesday night heard relief in Diana’s voice, and everyone’s in the background.  God doesn’t push us past what he thinks we can handle, it’s hard to believe but I think this is a good example of the power of God.

Pamela Hermon

The basics on Henry

Henry David Hermon was born on October 6, 2010.  He weighed 6 lbs, 6 oz. and was around 19 inches long.  He was born only about a week and a half early.  For the most part, the pregnancy was pretty normal.  The point of this is: nothing out of the ordinary was expected.  And for the first few hours of his life, things seemed overall pretty normal.   His parents, David & Dana, were able to do the usual new parent things: cut the umbilical cord, take those proud parent pictures, hold their newborn baby, pass him around to friends and family and hear how beautiful and perfect he was.  It wasn't until a nurse came in to do a routine vitals check that there was the first indication that something might not be right.  But maybe it was just a murmur.  Some more tests and checks showed that was probably something worse than that.  Oxygen levels weren't what they should have been.  He wasn't responding in ways he should.  A specialist happened to be at the hospital that normally wouldn't have been and confirmed that yes, something was definitely not right.  The decision was made that he needed to be sent immediately to Children's Mercy Hospital, leaving Dana behind at the hospital and separated from her baby.  And poor David having to leave her there. 

Once at Children's Mercy, many more tests were run.  After a few hours, the doctor finally emerged with some news for David.  This was critical.  They weren't sure what it was yet.  But it was related to his heart.  And without it being caught early at his delivery hospital, he likely wouldn't have survived 24 hours.  So for that, thank you to the staff at Olathe Med. 

Fortunately, Dana was able to be released the next morning so they could all be together again.  After a long morning and afternoon of testing, David & Dana were finally able to meet with the doctors to get some early answers.  The news wasn't good.  The problems were stemming from a severe heart defect.  There are openings in his heart where there shouldn't be.  There are valves that aren't doing what they should be doing.  There are vessels coming into the heart on the opposite side that they normally should.  He will require surgery within the first month and many more surgeries through out his life as his heart continues to grow.

                                                     Henry, 2 days old

Right now, we are still waiting for some answers on what all this means.  But we do know it is going to be a rough start for this little guy.  And yet we do have faith that he will grow healthy and strong.  At this point, we need prayers for Henry's healing and for God to bless the doctors treating him.  And prayers for David and Dana for peace and comfort and strength.  And when the need is known, we will need prayers that they will be provided for financially to allow them to be home for the extended period they will need, in addition to the medical expenses. 

Thank you for your love & support of this family we care so much about.       

First, a letter to my nephew

Henry,

Well bud, you have really caught me off guard.  Here I was planning your sleepovers at our house.  Thinking about what kind of a guy you'll be like when you grow up.  Planning on how I can get you to dress in all pink and purple just to really make your dad mad.  But wait.  We've got to get this heart of yours working right first. 

And that hit us all hard.  Oh, the excitement there has been about you coming into this world!  First grandchild on both sides...that is a coveted spot, little guy!  The spoiling you can get away with when you hold that title.  When that call came that the time for you to come was close...the world stopped for the Hermon & Hanson families.  How much would you weigh?  How tall would you be?  What was your name?  And then you were here!  Hooray!  But then the news came.  Something wasn't right.  But how un-right was it?  As it turns out, pretty un-right.  Thank God there are doctors and nurses that are trained to take care of hearts just like yours and babies just like you.  And mostly, thank God that there is a God that looks out for you. 

I don't think you could ever know the hours of sleep that have been lost or the buckets of tears that have been shed over concern for you.  Or the number of prayers God has heard on your behalf.  This is to say: you are loved Henry David!  By so many people. 

Speaking of prayers, here is an example of what my last 48 hours have looked like.  I pray.  I pray that you don't need surgery.  I pray that you go through life as a proof that miracles do happen.  I pray that if you do need surgery, that you need a lot less than they are predicting. I pray the surgery goes flawlessly.  I pray that your doctors let their hands and minds be an instrument for God's work.  I pray that you are able to run marathons.  I pray that if you aren't you won't care...'cause you're talented at cooler things than running.  I pray that you are quick to smile, have a great sense of humor, and a contagious laugh.  I pray for your mom and dad.  I pray they are able to be strong through this. I pray they are able to cry and break down when they need to.  I pray they have faith that God has a plan for you and for them too.  I pray they are able to handle everything that is coming.  I pray they will ask for help when they can't.   I pray they take time for themselves.  I pray they sleep at night.  I pray they let me be your first babysitter :)  I pray we know how to be there for you & your parents in the way you need us to.  I pray we know when to smother you guys with attention and when to give you space. 
Why do I do all this praying?  Because in the wise words of MC Hammer...you got to pray just to make it today.  What's that?  "You're really old and pretty lame Aunt Kelli"??  You're right, I am. 

But you remember this Mr. Henry: this lame aunt of yours really loves you.  More than can be said.

Love,
Aunt Kelli